Mom Guilt...It's a Thing!

Honestly. The ONE thing that sucks about motherhood is the unbelievable amount of pressure we put on ourselves to be perfect; to have everything together; to have the perfect kid that has everything together; to have the house together. YOU GUYS! It's not real! NOTHING IS EVER GOING TO BE PERFECT! Your life is not going to look perfect...EVER!

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Rhianna Sanford
Sometimes, I Go Numb.

Tears. The tears of the news that yet another girl with Rett Syndrome has died. It happens enough to fill a bathtub with tears and yet somehow, I really never get used to it. Every time it happens, I go numb. And I know it's my fight or flight kicking in to protect my heart from the pain of imagining myself in that dear mother's shoes. And then when I let them, the tears start to flow. The reality is that I, a parent of a child with this neurological, and sometimes, very unpredictable disease will probably outlive my daughter. And the thought of that is...unbearable.

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Rhianna Sanford
October is Rett Syndrome Awareness Month

Most know that October is Breast Cancer awareness month. Many others know that it's also Down Syndrome awareness month. But many do not know that Rett Syndrome Awareness month is additionally in October. For those of you who do not know my family well or haven't read This Special Life yet, Rett Syndrome is the neurological disorder which my 13-year-old daughter, Kaiya, was diagnosed with at the age of three. For that reason, this reason for commemoration hits very close to home for me.

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Rhianna Sanford